I would like to welcome everyone to the 3rd Annual Ride for Sadie & CDKL5 Awareness Motorcycle Event on September 24, 2016. This year we will be starting & finishing the ride @ SAC Park 438 Lake St. Shrewsbury MA. Registration will be from 9:00 AM until 11:30 AM, ride will leave @ 12:00 noon. $20 a bike, $10 passenger/walk-in. We have a great line up for entertainment, food by Big T's Jerky House and BBQ, 50/50 raffle and much more. All ages are welcome.

We Reserve the Right to Refuse Admission to anyone

CDKL5 is a rare genetic condition that mainly affects girls. It is caused by mutations in the CDKL5 gene which is located on the X-chromosome. It is not known what this gene does, although research is starting to provide some answers and probably more questions. The CDKL5 gene does obviously have an important role in early brain development.
What we do know is that as result of mutations in this gene, affected children begin to suffer epileptic seizures, usually in their first few weeks or months of life. They subsequently have severe developmental delay, do not usually develop the ability to walk or talk, and are completely dependent for their needs. In addition, they commonly suffer a number of other problems including, visual impairment, reflux (often requiring surgery) and musculo-skeletal problems.

For more information about Sadie & CDKL5 go to www.crusadingforsadie.com